Living My Life With Fibromyalgia

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Halloo,

I think what most people can’t wrap their heads around is that I openly talk about Fibromyalgia and how it affects my life yet they see me do so much activities on regular basis.

One thing I have come to realise about myself is that I am not brave. I am not strong, I am simply stubborn. I am very determined to live my life as normal as possible. To do that my stubborn nature comes to the fore and I fight like no man business to achieve this.

Most of the times that I am standing smiling and making sure that everything appear normal, I am in pain. Yes, many people may wonder why do I do it, what do I have to prove. The answer is simply- I am doing it for me. I don’t want to go through life living like a shadow. I don’t want to prove anything to anyone, just simply be a functioning person.

What am I or anybody else dealing with chronic illnesses supposed to do? Stay in bed in pain for the rest of our lives? Live like a vegetable, dependent on others for everything? I don’t think so. My stubborn streak won’t let me.

There are people out there whose illnesses made it impossible for them to live their beds, some in wheelchairs, some in hospitals. I am lucky to be able to move independently, yes very slowly, but movement it is. A great gift that I have no intention of wasting.

Everyday is a struggle of one thing or another. Sometimes you see the judgemental glances from people and you really want to sit them down and educate them, but you know it is pure waste of time.

To really understands how it works you have to be in the same situation or similar situation. There are days that the pain is just too much that I just stay in bed and cry. There are days that the pain is manageable and I get things done. Either way the pain is always present.

Even on those days that I push myself to work. I will eventually payback later with extreme pain and fatigue. Situations like this you can never win, you do or you don’t you still suffer. My philosophy is to just do and suffer.

So when you see me working tirelessly on my business, going to my salaried job, raising my children as best as I can, writing, and doing other things, just know it takes pure stubbornness to be standing upright like that.

If things are too difficult I stay away from public view, not that I am hiding, it’s just the way I deal with things.

Most people don’t even know that a lot of my writing and blogging work is done at midnights. I don’t sleep well. So instead of staring into space While others sleep I use the time to work. It is not ideal, but we all deal with our situations the way we think best.

If you are ever in a position to help someone with fibromyalgia, chronic pain or any chronic illnesses, please remember their ways of life is totally different from yours. You see them smiling and getting on with things and you may think they are feeling better now. No, this is a lifelong condition. They are only trying to live as best as they can. Don’t judge them. They are not faking their illnesses, instead, they are faking being well.

Thanks a lot for reading. Please, your contributions to this post will be appreciated in the comment section below. Help by clicking like and share with your friends. Also, don’t forget to join other subscribers to receive notifications of new posts by email. I appreciate it.

Stay with me,

Ruka

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About Post Author

Ruka

My name is Ruka. Born and bred in Nigeria. Now living in Ireland. I am a Woman, Feminist, Wife, Mother, Muslim, Black, and African. I am an Entrepreneur who also works in Finance Administration. I am a Fibromyalgia & Chronic Pain Warrior. I love writing and hope to make a name for myself doing it.

rukaganiyu5@gmail.com

https://www.rukasplace.com

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